Others in our community have chimed in to give their “best practices” on staying positive even in the most daunting, frustrating and painful times. We hope you find these beneficial and while some may seem easy to say, it is all about having the information, and then utilizing it in our daily lives….and repeating until it becomes a habit.
Mathew Tilford wants to respectfully provide his perspective in a response to this author’s well intentioned article on her experience with her disabled boyfriend “I went off and managed to fall in love with a man who happens to be paralyzed.
You know what’s sad about the disabled community? We’re okay with the bottom of the barrel representation we get in congress with the bare minimum in benefits. We’re told to be grateful for the American’s with Disabilities Act (ADA) and Fair Housing Act (FHA) because we are “lucky” to have them.
When I broke my neck at 18, I quickly realized the world was not as accessible as I perceived it to be on two feet. I will be the first to admit my ignorance of disabilities and what the needs of the disabled were.
For the past month I’ve had writer’s block. It’s not unusual for writers to experience this from time to time, myself included. This block, however, is different than anything I’ve ever encountered. It’s numb, almost hollow.
These medical supply companies have no accountability. Also, HIPAA bar’s me from asking about what other patients receive as far as cost of catheters. However, that doesn’t even matter because both Symbius and LoFric refused to give me any breakdown of charges.